Monday, June 17, 2013

Squirrels, Nuts, Leija's and Thomas'

HUH? You are probably saying to my title.  If you know us well enough, you will be able to figure it out without much difficulty.  For the rest of you, if you have seen the Movie, "Up" you will understand the Squirrel reference.  Taya Leija and I decided we are "Attention Deficit...SQUIRREL!" While Tyler Leija and I decided we were ADR "Attention Deficit...RABBIT!"  This occurred while he was taking me off road to help my nausea...yeah, I'm a weirdo...nothing my body does makes sense right now. 

For you medical buddies here are the run down on my symptoms:

Nauseous as all get out in the morning, but if I move, the Vestibular part of the nausea goes away but I still may end up throwing up regardless of what I do: cinnamon, ginnger, sea bands, blueberries, sam I am...ok Just kidding but you get the drift...I am doing everything in my power (and praying like crazy on top of it!) to not throw up. 

Going through a "light" Psychosis from who knows what drugs.  Apparently a lot more was broken when the "straw broke the camel's back" in the hospital.  We are going through round three of Psychosis.  Thankfully I was already on a low dose of Seroquel (which I was taking for sleep since the end of February because I didn't sleep for four months from October to February and went into a depression from lack of sleep and the combination of being really angry with God for Jordan having his heart attack, but I was hiding it really well.)  That's another story for another time....ha not the first time you've heard that on this blog and probably not the last!  :) :) 

I'm currently on a higher dose of Seroquel (300mg) and 2.5 mg of Lorazapam.  We went to get off the Lorazapam as quickly as possible because it suppresses the vestibular system and I see the otoneurologist on next Friday the 21st.  I also see my new ENT on Tuesday the 18th.  Please Pray that these appointments would go well and that some of my symptoms could be sorted out.  There is so much going on in my body right now that we don't know which end is up.

Right before I was admitted to the hospital I was being worked up for Polycystic Ovarian Syndrome (PCOS) as I had the subjective signs of hair loss and lack of a period (Oct 2-April 18). I also had "Waffle like ovaries" or rather, UN-ruptured follicles all around my ovaries.  I had an appointment on 5/9 with Dr. Thompson from my church to start hormone work up etc but got admitted suddenly to the hospital on 5/8.  You know a lot of what went on there and I don't remember what you know and don't know so I'll keep it short (for me!).  

Was "suddenly" discharged on May 30th (was expecting to go to inpatient rehab for 10 days).  Had our church and family and friends pack us up and move us from a two story house to a one story town house on Saturday June 1st, when Bill and Cathy were closing on the Townhouse they weren't expecting to find until September.  God knew I needed a one story house cause stairs were especially difficult right when I got out.  Another funny "small world story"....a guy that has gone to our church about twice as long as we have works at Banner Good Sam where I spent 22 days there and he does cardiac rehab...dun du dun...perfect guy for Jord to be friends with to get back in shape, although with my vestibular stuff I'm having to walk at least 2-4 miles in the morning before my stomach settles down enough and sometimes I STILL end up throwing up...go figure.

To sum up how you can pray for us:
 

Peace above all.  Lots of things are going on with my body that seem exactly opposite of the way they should be. (Like consistently running a 95.3 temp when 97.5 is my baseline and with the raging lung/sinus infection I have I should be at least a 99.)  Throwing up like crazy (no surprise with vestibular issues going on) but VRT (Vestibular Rehab Therapist....who also went to John MacArthur's church during his PT school...who also went to the same high school as Dana Dudley who drove me since I can't drive and Dana also was college roommates with my small group leader from the Tucson Sovereign Grace Church...just reading that sentence you can't tell me God isn't sovereign over EVERY SINGLE ONE OF OUR ACTIONS ON THIS EARTH.  (Psalm 139)  Yes, we are given a will and our own desires, but God uses those wills and desires of ours (and let me tell you I can be pretty stubborn and hard headed!) to bring glory to His name.  

Right now, GYN docs say "no cysts" consult with lung docs and lung docs say "Your lungs are fine consult with GYN docs".  De ja vu to two and a half years ago (Read my December to Remeber Story Part 1 and Part 2)...read that and you will understand the mere mention of pregnancy sends my family reeling.  My body is doing a lot of the same things it did back then that made me think I was pregnant.  Sarah Demarest called earlier this week and reminded me of Philippians 4:8 and spoke some wise words to me.  We DON'T know what is causing my belly to swell and me to puke and a million and one other pregnancy symptoms I've imagined for the last 7 years as I have pleaded with the Lord for a miracle from above.  What we DO KNOW is what God says in His Word is true and what tests have shown so far: blood and over the counter pregnancy tests are negative, ultrasound shows "nothing remarkable except a little extra fluid but that made sense cause I had just started my period." The GYN says he didn't think I was pregnant and God has given me an incredible supernatural peace through all of this.  He is God I am not...Isaiah 55 is one of my favorite chapters and one I have prayed through often for the salvation of friends and family, but it also reminds us that God's ways are higher than ours and He promises that His Word will never come back void....even when spoken during psychosis...the Word of God is the Word of God and you cannot pick and choose what you choose to believe!  John 14:6 "I AM the way, the truth, and the life, no man comes to the Father, but by Me.  and John 6:44 "No one can come to Me unless the Father who sent Me draws him; and I will raise him up on the last day."  

Because of what Jesus did on the cross for me, it doesn't matter what is causing my belly to swell.  Do I still cling to the miniscule ounce of hope with my God who is the God of miracles??  Absolutely!  He can do anything, anytime and any believer would agree with me.  However, sadly, we've been in this very position before.  Thankfully we caught it early enough, and my brain is not as affected, and I"m getting sleep and can hold coherent conversations...just get a little agitated and emotional sometimes...but hey what sinner wouldn't with all we have going on?  Only Jesus was God and only HE could live the perfect life in OUR place!  

Meds kicking in and I'm about to fade fast, but God is good and in control...been listening to Kutless album, "It is Well" though I want to get "Beleiver" too as it has the song "Even If" on it.  :) You tube them and be encougraged...and Josh Miles Love Letters too :)  

Clinging to the Mighty Maker of Heaven and Earth,
Submitting to hubby and going to bed now (even though he's snoring and wouldn't have a clue if I stayed up longer...but God knows EVERY STEP we take!)
In the Love of the Lamb,
:) :) Rachelle :) :)     (extra smileys just for you Tom Massa...or whoever says I can't write a sentence without tons of smileys...I can't help being "Happy Happy Happy" as Phil Robertson says"  :) :) :) :) I'll leave you with some old pics, new pics, fun pics blue pics cause that what I love to do!!  :) :) :) :0 :):0 :) :) :) x0x0x0x0x0x0x0x0x0x0x0x0x0x0x0x0x0x0x0x0x0x0

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